Organizations for Advocacy
American Association on Intellectual and Developmental Disabilities (AAIDD) "AAIDD promotes progressive policies, sound research, effective practices and universal human rights for people with intellectual and developmental disabilities."
The Arc of the United States "... advocates for the rights and full participation of all children and adults with intellectual and developmental disabilities ..."
Association of University Centers on Disabilities (AUCD) "A network of interdisciplinary centers advancing policy and practice for and with individuals with developmental and other disabilities, their families, and communities."
University Centers for Excellence in Developmental Disabilities (UCEDD) "... work with people with (developmental) disabilities, members of their families, state and local government agencies, and community providers in projects that provide training, technical assistance, service, research, and information sharing ...".
National Association of Councils on Developmental Disabilities (NACDD)"... organization with the purpose of promoting and enhancing the outcomes of our member councils in developing and sustaining inclusive communities and self directed services and supports for individuals with developmental disabilities ...".
National Association for the Dually Diagnosed (NADD) Mission: "To advance mental wellness for persons with developmental disabilities through the promotion of excellence in mental health care."
NDSC National Down Syndrome Congress Center Mission "... is to provide information, advocacy and support concerning all aspects of life for individuals with Down syndrome ...".
The National Fragile X Foundation Home Page"... unites the Fragile X community to: Enrich lives through educational and emotional support, Promote public and professional awareness, and Advance research toward improved treatments and a cure for Fragile X ...".
The ArcLink "Harnessing the power of the Internet to provide people with developmental disabilities the information and resources to exercise informed choice to live self-determined and fulfilling lives in their communities...".
Organizations for Daily Living
Find My Roommate "FindMyRoommate is an online matching service for people with disabilities and their family members and, in some states, for people open to sharing a home with someone with a disability."
MOSAIC "Mosaic is a faith-based organization serving people with intellectual disabilities."
Organizations for Research
The Research and Training Center on Community Living "... provides research, evaluation, training, technical assistance and dissemination to support the aspirations of persons with developmental disabilities to live full, productive and integrated lives in their communities." Creator of "Self-Advocacy Online". A part of The Institute on Community Integration, University of Minnesota.
Institute on Community Integration (ICI) "Through collaborative research, training, and information sharing, the "... ICI ..." improves policies and practices to ensure that all children, youth, and adults with disabilities are valued by, and contribute to, their communities of choice." A University Center for Excellence in Developmental Disabilities (UCEDD) at The University of Minnesota.
Intellectual and Developmental Disability Research Centers (IDDRC) "... contribute to the development and implementation of evidence-based practices by evaluating the effectiveness of biological, biochemical, and behavioral interventions; developing assistive technologies; and advancing prenatal diagnosis and newborn screening ...".
The Coleman Institute for Cognitive Disabilities"... mission is to catalyze and integrate advances in science, engineering and technology to promote the quality of life and independent living of people with cognitive disabilities ...". University of Colorado
Rehabilitation Research and Training Center on Aging with Developmental Disabilities (RRTCADD) "This web site is designed to provide information on the latest research, model programs, and policy issues pertaining to this population. It describes training and technical assistance opportunities, conferences, and available resources." University of Illinois at Chicago
Think College Conducts "... research, training, and technical assistance for professionals, families, and students related to postsecondary education for individuals with intellectual and other developmental disabilities ...". An initiative of The Institute for Community Inclusion (ICI) at the University of Massachusetts Boston.
Organizations for Government
National Association of State Directors of Developmental Disabilities Services (NASDDDS) "... goal is to promote and assist state agencies in developing effective, efficient service delivery systems that furnish high-quality supports to people with developmental disabilities ...".
National Center on Birth Defects and Developmental Disabilities (NCBDDD) Mission "... is to promote the health of babies, children and adults and enhance the potential for full, productive living ...". Part of the Center for Disease Control and Prevention (CDC).
President’s Committee for People with Intellectual Disabilities Mission "... is to provide advice and assistance to the President of the United States and the Secretary of Health and Human Services on a broad range of topics that impact people with intellectual disabilities and the field of Intellectual Disabilities ...".
Organizations for Training
Leadership Education in Neurodevelopmental and Related Disabilities (LEND) Provides "... long-term, graduate level interdisciplinary training as well as interdisciplinary services and care ...".