RESEARCH OPPORTUNITY
People with Down syndrome and their parents are invited to participate in a study on emotional and behavioral health.
WHO CAN PARTICIPATE?
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People with Down syndrome, aged 12 - 45
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Parents with a child with Down syndrome who is aged 12 - 45
Do parents and children both participate?
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Adults with Down syndrome who sign their own medical or legal documents are welcome to invite a parent or legal guardian to participate with them or they may choose to participate on their own.
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Children under the age of 18 or adults with Down syndrome who have a legal guardian must have a parent or legal guardian participate with them.
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If the child or adult with Down syndrome is unable to participate, a parent can participate alone.
WHAT'S INVOLVED?
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Online Surveys
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Parents and/or person with Down syndrome are asked to answer several standardized questionnaires about emotions and behaviors. Surveys take about 30 minutes to 1 hour.
Emotional and Health Interview
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An online interview with the parent and/or person with Down syndrome about symptoms like anxiety or depression.
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The interview takes approximately 1 hour to complete.
DNA Cheek Swab
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The person with Down syndrome will be asked for a DNA sample using a painless cheek swab sent through the mail.